<font color="blue"> Superbowl is over and not a moment too soon. The lack of appropriate, and might I say legal, accommodations for handicapped did not go unnoticed by me! I am too fatigue to compile an after action report (as they call it in the military) but it will be on it when I do write one.
It was easy to become caught up in the moment and forget I was disabled, only to find myself hitting walls along the way.

I really did ok, considering, but wish to do better
next time (3 years?)
This week has been one of trying to recover a bit. I have slept more than normal, and still wake up tired. I know I am writhing in pain during sleep so it isn't very restorative. Plus, the pain increases and the effects increase when I don't take enough medicine to calm it as best I can. This often happens during the night, as I need to wake around 3 am and take a dose.
My sacrum is out and the pain has increased incrementally, I believe with the swelling from the long term "outage."
A situation occurred today: I finally went to my MD to pick up scripts. I was due a new pain med script on the 28th of January, but was too tired and stressed to even manage calling the request in! Tuesday I called (from T's office) and today I went to pick the prescriptions up. While there, I asked if I could have a shot of Toredol (anti inflamation) because of the pain flare.

They said the MD would see me after she sees all her other patients (meaning at the end of the day.) My MD has NO allowance for any "walk in." They told me I had to schedule my visit. I told them I don't schedule pain flares.
I left, to go to PT and hopefully obtain a bit of relief, which I did, but not complete in the least. After sitting for an hour at Ts, and then driving home, and then with activity of the day... the pain is flaring.
Now, I post this situation because how I respond affects my pain level. T helped me again to realize that I don't need to heap more stress on top of my pain, thus making it worse. Of course I agreed. However, my idea was to never ask MD for a shot again, and just use the ER instead. T surely wishes me to give MD more tries, and to ask each time.
Ok. I really don't want to go to ER each flare... one reason (sorry about this thinking, I will work on changing it...) is that I had a good experience the first time I used the ER for a shot, if I go again it might not be that way, and then I wouldn't have the "backup" plan... it's a psychological support I need to know is there for me.
So I need to always ask the MD first. I need to know the ER is there, and even if each experience isn't the best, I can get help there. Stressing over the issue only makes me worse. I am in pain. My sacrum is out again. If I reach a point where I'm not able to manage my pain, then I can go to the ER. I don't have to try and work through such intense pain. Yeah, I have a back up plan.