Quote:
Originally Posted by newtus
when i was college i was on the freaking board to help fight the system and alternative medications. and thats when if i remember on either no meds or very little meds. does no one remmeber me saying that? does anyone remmeber when i was on these boards fighting the system? thats when i was on little to no meds and i was getting sh_t done. i might compare it to hypomania or even mania and i wasnt totally healthy but i was getting stuff done.
i even met with the state representative of NAMI of TEXAS personally. some people may be new to hearing that. i know some are.
SometimesP your preaching to the choir. i was on the board and group of people fighting this in college when i was just not on these meds or very little.
im dreading when this med kicks in because i cant think. i cant physically function correctly. my negative symptoms are ramped.
i agree not being on meds hasnt ENTIRELY helped me. but i was doing stuff. it wasnt holding me back like it is now. what im saying is they arent listening or even compromising for some reason i dont entirely know and i even ASKED them today "WHY" they said "yeaaa..." and went on.
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Sorry I've only been here since last May...I didn't realize you were an activist. That's awesome! I'm at this point trying to think of what I could do to generate the most impact...I'm think about maybe writing something and submitting it to the ny times. Anyway sorry if I've been overbearing with my words today I'm just worked up because of my pdoc visit yesterday....there is just this insecurity when a single person can determine your freedom so it is just as much me reminding myself of the unwritten rules and to be very careful with the docs. There is no way to win but to get better and get out. The whole system is set to work against people who do not respond to the meds. I was incredibly lucky that the meds worked for me at all...I'm sorry your treatment team is awful and agree it is worth a shot to try and change docs if you can.