I hope that the clinical trials discover your diagnosis and find some treatment that aids you into a long remission period.

It seems strange but it isn't uncommon, for people to get caught up in major health issues in their 20's. (Just my personal experience in life) It often takes a few years for specialists to find the diagnosis and best treatment for us. In the meantime, however, we often become overwhelmed with all sorts of emotions: frustration, confusion, anger, self-hate, etc.

Thankfully though, the answers often do finally come and quickly our emotional problems (related to our physical misery) seem to just disappear. That's a relief! I hope that you aren't too far away from that point. The trick is to get hooked up with the right specialist & taking the right tests.

Are you seeing a neurologist? Is that the specialist that you spoke of? If not, check out a good one for proper tests with your nerve problems. Another helpful doctor for you may be a pDoc (psychiatrist), if a neuro clears you of physical illnesses after CT scan, EEG, and physical check-up.

Very best wishes sent you way ~ Please do let us know what happens, okay? Thank you!