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Old Feb 13, 2014, 02:03 PM
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Sometimes psychotic Sometimes psychotic is offline
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Member Since: May 2013
Location: Chicago
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Quote:
Originally Posted by paulycoll View Post
I'll tell you my understanding of a sz dx.

The person has transient positive symptoms exceeding 6months.
The person can no longer function practically or convincingly without intervention.

I assume that the people who get better without med intervention were less effected by the disorder and had less severe symptoms. Is that fair?
Sure its fair.

My transient positive symptoms lasted about a year and a half but they were infrequent and seemed to be based on stress. After the initial 3 months on risperidone I had no more than 2 hallucinations in any given month though. This actually put me below the SIPS/SOPS rating they use for dxing kids in their prodrome so they just didn't count it as enough for any sort of sz dx. I was at an academic center so they are less likely to want to give you a sz diagnosis. My psychologist went with schizophreniform for me and my pdoc never told me anything other than psychosis but he said he didn't know if I had sz because he would have to take me off the meds to find out and that was unethical. Also I had 2 hallucinations coming off the meds and that's 2.5 years out but I hadn't had any at all in the year before that. So its not that I don't have hallucinations ever they are just way down as they never stopped when I was sick---it was constant voices---also had hallucinations with every sense, smell touch taste...

I was on risperidone or abilify for the whole period of 2.5 years after the first 1.5 months. Now was I functional during those 1.5 months? Well I kept showing up at work but I don't have a lot of supervision so the fact that I would randomly take a train downtown during the day to try and escape the voice transmitters by random walking wasn't really noticed. I mean basically I am the supervisor so who is going to rat me out you know. A couple of times I thought I was terribly ill(because the voices told me I was or due to hallucinations of pain) so I skipped work and went to the ER, one of those times was what got my coworkers to take me to the pdoc the first time. I also just walked out of the restaurant without eating one time I was out with my friends from work for lunch---I just walked out and went home and never went back to work that day. Any other job I would have been fired for sure. I started getting weird ideas about the experiments I had done in the past so I repeated them rather than doing the new work I was supposed to be doing. I stopped being able to remember if I had done a step in an experiment or not even though I had just done it so I had to write down everything I was doing as I was doing it. So things had pretty much gotten to the point where I wasn't functioning well at all but people had no idea until I told the police I had been raped by a former coworker---this guy was in Boston several states away and had just gotten engaged. One of my friends had even talked to him the night before---this made no sense to anyone and that's how I finally got caught and put on meds. So for me meds were critical but they worked right away as in within the week 98% of the voices were gone---then I got cbt and that helped me develop my own techniques to get rid of the rest. I tried getting off the meds after a year but it didn't work out at all I could not stand the way I felt at all after only 2 weeks on a reduced dose...was I going to relapse...didn't want to take the chance went back on. Honestly I think without the meds I would have died...I mean I almost gave my entire life savings to the food bank, I wanted to break out all my teeth to get out the supposed transmitter. I wanted to rip up my home to find the cameras and recorders. I was supposed to crush my bird who would be reborn as a mini-dragon who would filter the voices for me. Wanted to kill this dude at Harvard. So basically I was sick enough that eventually I could have done something irreversible and the only question was whether that first encounter was going to be with doctors or cops. It was a downhill slide that was only getting worse till I got the meds. But here is the thing if you're on meds before the first 6 months are up and they fully control your symptoms how will you ever know if you have sz or not----that is why my pdoc never gave me a dx---he really didn't know and neither do I. He did say I was high functioning though which is why I didn't actually do those horrible things...

Are the people who recover without meds milder...I don't think Nash was mild he had a lot of intervention ECT/meds etc but my understanding is he didn't recover until off the meds. I know that Vonnegut had meds initially at least but he never mentions whether or when he went off them. Sacks is still on meds. Personally I think you would have to be masochistic to try this without the meds once you realize you're sick (which I had no idea of while sick). I mean even for a cold you don't have to take a decongestant but why wouldn't you---I mean why feel sick if you don't need to?

So I'm 3 months off the meds so far and I see it as experimental for at least the first year. Still hoping for the best. I'm still not sure I meet your criteria for a dx of sz because the meds were so effective and I have no idea if I will relapse in the future (there is a roughly 5 year period of higher risk after an initial break). If you want to ask me anything I'm open to questions though---oh and in that 2.5 year period of meds I was absolutely rigid---I missed one pill once and that is it out of what a 1,000. Still I don't think the meds cured me but blocked my symptoms until I could get better on my own but then I have no way of knowing, anything could be true. That was kind of why I asked what you actually want to know because like I said the concept that I would know how I got better is at this point as as unintelligible as the idea that I would understand why I got sick in the first place...
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