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Old Feb 24, 2007, 07:28 PM
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January January is offline
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Member Since: Jan 2005
Location: USA
Posts: 15,093
(((((((((( Rhapsody )))))))))))))

I'm so sorry you're going through this.

I have two suggestions.

First, are you taking a med in the lamictal family? It can cause a Stephens/Johnson, (or Johnson/Stephens) rash and it's very important you talk to your pdoc and show her the rash if you are taking a drug in that family. I took Lamictal for years with great success and all at once I got the rash. You can develop it at any time, not just when you start the meds. When you stop the med, the rash stops but you must hurry. Your pdoc will back you off it much faster than normally done.

Second, last week I was diagnosed with Mixed Connective Tissue Disease. It is a mixture of lupus, polymyocitis, schleraderma and Raynaulds. I have other kinds of arthritis, ect., all autoimmune problems. With MCTD, you have some symptoms of them all. In time, one may come to the forefront, but right now, it's like a cocktail of autoimmune problems. It's not fun. You do feel like you have the flu when the rash hits and you run a fever. Right now my face and legs are broken out again and it burns. I never know where the rash will be when I wake up.

My Dr. told me to use only white Ivory soap. It helps. I try to buy odorless detergent and fabric softener.

If you want, you are more than welcome to send me a pm about it. I'm still learning, but I'd say you have one of the two I've mentioned.

Hugs,

Jan
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