Hi doodle, I am happy to hear about the outcome. My appointment is tomorrow, and I am running scared, because they have a lot of pull to my recent diagnose. I know they are real concerned about myself not understanding this Narcolepsy/Chronic Fatigue Syndrome. To make this a shot story, I can say I have refused all tests and am very incompliant with treatment, which now involves the police because of many ditch episodes and the driving control board. I therefore had to do the sleep study. I failed badly and am considered very severe and a danger to myself if I don’t come to terms with things. I am only 39 and miss my life of work and leisure activities, or just being with my friends. I don’t want anyone close to me to know I have this condition, so I limit myself to a ten-minute convocation, and never go out because my condition would show. This really hurts my friends thing I am mad at them. I miss my life and want it back so badly. I am at a disadvantage because my two specialists are psychiatrists who specialize with sleep and are the top specialists. I gave them every reason in the world to drop the issue, on their diagnoses of anorexia. When asked about do I feel fat? “I say oh no I think I’m too skinny” worry about getting fat? “ No why would I worry about that” you said they can’t force you in for help, and with me they can use my diagnoses on my sleep study, and the trouble I have caused myself. I am afraid they will do this as well as monitor my eating habits. Doodle, I honestly am nausea and feel sick because of nerves probably. I have always refused antidepressants in the past and still do not want to go on them. I also go by my jeans and know if I lost weight, we are quit alike; I would never have posted under this category, but another, as this is not my primary problem. After reading your post I had to respond and I am glad I did. So do you weigh yourself or go by how your jeans feel. I am 5’2 and “well” have been sick sooo ? I do know I wear my 9-year-old nephews clothes, and bought a size 12 in the girl section, adult size is 0, but they are to big. ( I am sick to my stomach though)To be honest they took it upon them selves years ago and when I was in the hospital they tried treating me for this. I might of then, but I am older and have been over it. They should not be holding on to the past. I was never treated for this because I left. I know I need help with my sleeping condition, but now I am ready to give up, I don’t have the energy to fight another part of me gone. I need my life back and this is not going to happen. I was told I have to learn to change the way I once was as this will never come to be. So maybe I should not go at all. They have the authority due to knowledge on the last test to do what they want, and I have no say. You said they tried to trick you about your eating disorder? Can you tell me what they did? I am just so very tired and my only option is to leave my home where nobody can find me. I am desperate on getting better, and I think this would be if I did things on my own by myself, then come back healed. I live in Canada and our medical system is quit different, I don’t have to pay for anything so it’s hard to refuse any tests.
I really liked dextor”s phrase, “ The world is what we make of it”
This is so true! And I want my life back and this will be done, or there is no life, sort off speak. You said you were having marriage problems. I have just finished my divorce, and wow this was very stressful, so I am sorry to hear this. I can tell you I was at my end with the divorce, because of so much garbage and legal junk, but I have never been happier to have him out of my life, this will pass for you as well. I am actually friends with my ex. I really hope you do well with the diatrition, does she come to your home?
Ratty,
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