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Old Apr 03, 2014, 04:40 PM
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Victoria'smom Victoria'smom is offline
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Member Since: Apr 2012
Location: Earth
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I'm 30, I have CP and bp 1. I also had 2 heal cord extensions, I'm supposed to wear braces. Let me tell you a secret braces hurt like hell. I'd rather risk breaking my ankles then wear a brace any day. So I found heavy knee high boots create a similar less painful version of an AFO . I waited at least 3 years in excutiating pain in my hip because I did not want to hear that I need another surgery or I'm working my way to a wheelchair. I didn't get good news when I went to the orthopedic but it wasn't as bad as I thought. I will need a hip replacement but later in life. I no longer am looking at being confine to a wheelchair. The orthopedic talked about another surgery but wanted a second opinion from a nurologist. So I went to see him, guess what? They can now use muscle relaxers and botox instead of heal cord extensions. Now I get ssi so I can pay for my medications and all my doctors.

It's hard to find a significant other that doesn't just want to use you. When you do its hard to convince family, friends and his family and friends that he is not using you. Its hard for even therapists to look passed the CP to recognize that mental issues are not related to CP. So all this is very frustrating. She may do better with an online therapist until she is ready to see one in person.

Edited to add: swimming has always help me with my BP and CP.
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Last edited by Victoria'smom; Apr 03, 2014 at 04:56 PM.