Hi p1994, it must be really frustrating/feeling like they don't want to know or aren't interested/like your kind of abandoned with all of this.
But if it's anything like where I am it might just be coming down to the "administrative" delays, workloads.....caseloads....all of that.
Now I know you shouldn't have to. but sometimes it can really pay to keep phoning, keep chasing them up.......bring a bit more attention to the fact that you're waiting and it is important (because it is!!).
Maybe your doctor could give you a phone number to contact, they should have some contacts. They might offer to chase it up for you even, but if you could too then maybe that might be helpful.
I guess all of this waiting, not knowing, not having support there can't be helping your emotions as well, right? But if you can keep a real focus on you as well, and doing everything you can/as much as you can that might help even just a little. Whether at a particular time that's getting a little space from what's going on for you physically or emotionally; talking to someone; writing things down; finding things to distract you........Different things might help a little at different times, just try your best to focus on things that may be "right"/OK for you.
Alison