Quote:
Originally Posted by Grey Matter
I am really sad. I can't explain it correctly. My parents have been no help. Telling me they have to live with their illnesses for the rest of their lives to which I replied to, quite bluntly with, "Yes but no offense, you're in your 50's. I am 23.".
No one understand why I am taking this so hard and why it's hurting me. I already feel so broken mentally and now my body is breaking with it. No one is letting me feel validated in my emotions, telling me to suck it up and move on, which I will. Right now I just need to grasp that my body isn't the same anymore. And that's god damn hard.
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I can't say I understand. I've had my disability my entire life. All 27 years worth of it. BUT. My disability itself continues to evolve, and things continue to change... and not for the better. It IS hard.
So incredibly hard.
Your body isn't the same anymore. You've lost something. It is grief. So be angry. Be sad. Be whatever you need to be. Get support. I'm glad there are support groups for you.
You are still the same person, at the heart of it. Even when you're now more 'broken' than you were before - you are still you. Just a slightly more different you.
I'm sorry that you're hurting. I AM glad that you've got a diagnosis. Having a diagnosis is hard, but it is also helpful to validate how you've been feeling.
You don't have to be the strong one. Our roles can change. Your family may hate it, and rebel against it - but you need to do whatever feels right for you. Because, ultimately, you are the important one in your life.