Wow, I just wanted to say I am glad you told your story. Illnesses are the pits, but support is what ya need like healingme4me said. You are brave and strong.
People can be insensitive of what they don't understand.

Recently what I did, I ended up in a hospital for stuff and found brochures about my illness. I unfortunately have a few major illnesses that are unseen. My PTSD or post traumatic stress disorder is complex so I got the brochures and handed them out to my mother in law and some others. I want them informed. They cannot show me any sort of care if they don't get it. At least I' am hoping for a some what positive outcome.
Still, people can be hurtful and senseless, but you have us to help keep ya going.
I joined a Lupus support group on Facebook even though I have not been diagnosed, but they give support for RA, OA, Fibromyalgia, etc. They post some encourage quotes that make me stop and think about me situation.
Whats interesting to is that the faces we put on at times need to just make us happy. I have to try and remember that, though not easy.
Big Kuddos to you for looking for support.
Can you explain to me about your adult Stills disease, never heard of it either.
Grandma