I have ben doing pain management for about 15 years now and its not helping me a whole lot anymore. I am currently on 125mcg of fentanyl patches that I change every 3 days and I take immediate release morphine sulfate 30 mg tablets every 8 hours, soma 350mg three times a day, neurontin 300mg twice a day and 800mg at night. I used to also take NSAIDs but because of my stomach surgery I can't take them anymore. I also take Xanax 0.5mg 1-2 tabs up to 3 times a day and lamicitial 200mg ODT daily. Now before I started taking all these pain ,I tried all the of the doctors other suggestions. I have done aquatic physical therapy until my joints kept swelling and the doctors made me stop. I also did interventional radiology , epidurals (also until told to stop), selective nerve root injections, and trigger point injections. I did all those until they stopped being effective.
I have been diagnosed with fibromyalgia, occipital neuralgia, degenerative disc disease, spinal stenosis, chronic regional pain syndrome, nerve damage, fractured L5, L3 crushed, L2, L4 herniated, I have had 3 knee surgeries so far and need to have both knees replaced, need hip replacement, need 2 level discetomy with fusion on the lumbar spine, and since we are naming disorders bipolar type 1. I have not had a pain free day since 2000 and I no longer remember what no pain feels like and I probably will never experience that again on this earth. I am waiting till kids get a bit older and more independent before I start having the surgeries and I am going to completely wear my original parts out till I can't walk any longer. I have also lost 120 pounds and that has helped quite a bit with the pain and I am going to continue to do so maybe about another 50 pounds or so and my spinal neurosurgeon said it was a good idea to wait until I have lost all the wait before having the back surgeries. I am only 40 but feel like I am 40 years old and feel like I have the body of an 80 year old. My main goal is to eventually be in good enough shape to get job. Not sure how realistic of a goal that working is but I am still going to pray for it.
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