
Apr 28, 2014, 03:19 PM
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Member Since: Jan 2014
Location: Toledo, OH
Posts: 210
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Quote:
Originally Posted by Cherry73
I have ben doing pain management for about 15 years now and its not helping me a whole lot anymore. I am currently on 125mcg of fentanyl patches that I change every 3 days and I take immediate release morphine sulfate 30 mg tablets every 8 hours, soma 350mg three times a day, neurontin 300mg twice a day and 800mg at night. I used to also take NSAIDs but because of my stomach surgery I can't take them anymore. I also take Xanax 0.5mg 1-2 tabs up to 3 times a day and lamicitial 200mg ODT daily. Now before I started taking all these pain ,I tried all the of the doctors other suggestions. I have done aquatic physical therapy until my joints kept swelling and the doctors made me stop. I also did interventional radiology , epidurals (also until told to stop), selective nerve root injections, and trigger point injections. I did all those until they stopped being effective.
I have been diagnosed with fibromyalgia, occipital neuralgia, degenerative disc disease, spinal stenosis, chronic regional pain syndrome, nerve damage, fractured L5, L3 crushed, L2, L4 herniated, I have had 3 knee surgeries so far and need to have both knees replaced, need hip replacement, need 2 level discetomy with fusion on the lumbar spine, and since we are naming disorders bipolar type 1. I have not had a pain free day since 2000 and I no longer remember what no pain feels like and I probably will never experience that again on this earth. I am waiting till kids get a bit older and more independent before I start having the surgeries and I am going to completely wear my original parts out till I can't walk any longer. I have also lost 120 pounds and that has helped quite a bit with the pain and I am going to continue to do so maybe about another 50 pounds or so and my spinal neurosurgeon said it was a good idea to wait until I have lost all the wait before having the back surgeries. I am only 40 but feel like I am 40 years old and feel like I have the body of an 80 year old. My main goal is to eventually be in good enough shape to get job. Not sure how realistic of a goal that working is but I am still going to pray for it.
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I also am bipolar. Seems like you've been through alot and you have more problems that would warrant stronger pain management then me...Although my pain is bad at times..There are sometimes where I am only a 1-2 on the pain scale. I know deep down that being on narcotics isnt the answer but I wish someone would give me a shot at being on them so I can at least see how it will affect me. The dr's think because I can work that I'm ok. I work at a desk..I sit all day...Right now my pain is really bad and I dont have any pain meds other than my patch...I have to suck it up...I have thought about going and seeing every pain management dr in my area until I get one who will take me seriously but I dont want to be labeled a drug seeker..Only time will tell.
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Dx:
Bipolar NOS
BPD
Chronic Pain related to Interstitial Cystitis, Fibromyalgia, Chronic Migraines, IBS and Chronic Pancreatitis
Medication:
Welbutrin xl 300mg
Xanax .25mg 4x a day (take it prn though)
trazadone 200mg
lamictal 300mg
aldactone 100mg
linzess 145mg
butrans 15mcg
topimax 50mg
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