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Originally Posted by moodycow
thankyou so much for this ,wish i could put you in my pocket and take you to all appts i am so crap at asking questions particularly the right ones , i tend to get overwhelmed by it all and confused about who is who and responsibilities ect and sometimes i just dont care as they often make me feel like an inconvienence !!
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I'm really sorry, it sounds like you've had a rough time of it and to be honest with the way mental health services are going here it hardly surprises me. Do you think advocacy might be useful? I've included a link from the Mind website which might be useful
Mind - Finding an advocate I can't recommend the Mind website highly enough - it's very good at providing all sorts of info and support and you can also call/email them.
At your next MH appointment, I would ask for a copy of your most recent care plan and see whether what it says is actually being carried out. So for example, are you seeing the psychiatrist regularly enough to discuss overall treatment and medicine plan? (If you're on meds or would like to be). Do you know who your care coordinator is? They are the person who acts a sort of intermediary between yourself, the different services involved in your care and your psychiatrist. A care coordinator can be a social worker, mental health nurse or even a therapist. They're meant to provide practical and emotional support. I would also find out where this care coordinator is based and what their number is. Usually they're where your CMHT (community mental health team) is and are available on an extension. Sometimes the same goes for the psychiatrist in charge of your care. The number for the CMHT is not only important for reaching them (if that's the case), it also might mean you have the option of speaking to a duty worker there. They can help you through times of greater emotional need and even crisis (especially useful if your care coordinator/psychiatrist are not immediately available to talk too). If need be they refer you to the crisis team or in extreme situations, emergency services. Duty workers also make a brief note of the detail of your call so that a care coordinator can know what's happened most recently by checking your notes. (Don't worry you have control over how much information is shared and whether you want further contact from someone like your CC).
I realise you may already know a lot of this but I really encourage you to read the Mind website for further info. Whenever you next see someone involved in your care I hope you can find a way of asking them more specifically what their role is. From there they should be able to better explain the chain of command and where they fit into it. I always take a notepad with me to appointments as my memory is poor and I need a more adequate record of who I've spoken too and what about. As I said before, if you ever want to message me I'm here. I hope I've been helpful