Apparently they did not qualify for life insurance because of their diagnosis. I know that in my country (Canada) people have been denied insurance for the same reason, though there appears to be insurers that will allow it. No one will find out unless you tell them, but for some things, you may be required to tell them. I doubt employers would be able to discriminate against you and they have no business asking any medical questions unless it directly affects the job.

I am not going to say that an official diagnosis is "better". Given the above and the cost to be diagnosed in most countries many are not diagnosed. The "community" appears to be very accepting of self diagnosed people. For me I saw more benefit than not as I needed to know for myself.

What would you gain by being diagnosed?