Hi,

I have extremely rare form of osteogenesis imperfecta that pretty much causes my connective tissue to be extremely soft. It mainly affects my bones, joints and ears, but lately it has also started to affect my heart. I'm part of a study that plans to use stem cell transplantation to prolong my life and replenish my bone cells. Part of that treatment also involves chemo- and hormone therapy and total body irradiation.

I'm just slowly losing my will to live. Most of my traumas are related to various accidents and surgeries. I kept everything bad that happened inside for nearly my entire life. I think that is why my parents were so surprised that I'm not okay.