On Dad my parents live 2 1/2 hours away (Mom does not drive) and my daughter is only 15 minutes away. I am involved as much as I can. March was a really hard month for both my Dad (some close calls on not being here anymore) and daughter so I was going crazy splitting time up. Would spend a week to week and half at my parents so I could do all transportation back and worth to hospital and everywhere else. My brother lives only 10 minutes away so he gets so much of it I try to give him a break when I can. Seemed as soon as I would come back daughter was not doing good it was extremely tough as I could not be at both places at same time of course. I have tried online for support for parents with adult children having lupus haven't had much luck on that. On hubby he has been there through it all and when I came out of the hospital 7 years ago I said no more mask. Did good until lately we have done some very serious talking about everything I think he is giving as much as he can. I think it is really hard for him to see how good I was and wish I could be there again plus not sure why it went down hill. Plus we talked and honestly it is hard for him to see all the money go out and feel like not getting results. I did try to explain to him how priceless my therapist has been over the years. I can email whenever I need too and she graciously will respond that is going above and beyond. She has been a lifeline many times and when others get tired or whatever she says we will get through this together. She is totally objective but has my back when it is so hard sometimes for others. So for hubby I need to give him a break I think he is getting to a breaking point. He definitely tries to understand were I am coming from but it is difficult for him. Please I am not being mean to the guys out there but I think most men see things black and white. At least for me I see things in gray. I truly like being able to talk to people that totally get were I am coming from. I believe it will make it easier to get through the tough days.