Thread: Self Diagnosis
View Single Post
 
Old Jun 22, 2014, 04:19 PM
Kath Kath is offline
Member
 
Member Since: Apr 2013
Location: Ione, ca
Posts: 35
Bluntly - doctors and such have their own beliefs and that effects what they think is wrong and how they think they should practice medicine. Example - deaf - and past 50 =dementia. Parkinson's + deaf =dementia-let them die, help them die.

A friend lost her mother in a "so-called" excellent nursing home-2 years they tried to get daughter to allow stoppage of food through feeding tube. Feeding tube is for inability to swallow safely-dysphagia. My profession is 80% dysphagia. I am now aware of mother's overall level of Parkinson's-I have at least 20-30 patients far, far worse with Parkinson's, ALS, Huntington's, MS, repeated stroke, as well as things no one bothered to diagnose. They are eating, drinking, sometimes being fed)- altered textures, viscosities, speed, timing, positioning. And they are safe as long as they follow the prescription for all the above, and usually content. 1 patient, some CNAs had senior RN convinced patient was aspirating badly. Then 2 CNA's, listening, said no, just follow directions on the wall. Point of view, and yes, disrespect for the sick and elderly.

Whoever you get help from, and you'll need some, has a point of view. Their background, your sex, age, race, everything is included.

I had a problem. MDs-couldn't figure it out-I didn't fit usual pattern.They admitted it was real. I made a list of all symptoms, even ones that seemed irrelevant. I found all possible names for those symptoms. I took grouped 4-5 of symptoms at a time and played google. I did it with all the symptoms - coming up with at least 50 different searches, symptoms phrased differently. Results confusing at first. Then realized that 4 diagnoses kept coming up on all searches, some as rarities, some not. I checked, double checked, researched each. 2 I would be dead in 6 months - forget them. 1-I would have had to sell the MD.-test might not have shown it, despite symptoms being textbook. Md's look at tests, not reality. Last 1 related to the 1 before, but I could handle with massive across counter supplements-the level for diagnosis #3 and would always require a prescription. I got better.Told MD-he ran a test-"you're in low normal range" - for me that's always low. He shook his head. Yhat MD decided I made him uncomfortable a month later and dropped me.

Normal is just-for ex. 1000 people, 150 - incredibly good health, 150 really horrible people, 700 somewhere in middle. There are no standards of healthy.

1)Research, document. - over and over. 2)Check with friends-do they see you displaying what you think is happening, or are you imagining things. 3)do they ever have similar responses and you didn't have standard to go by for what is usual? 4)What can you do on basis testing? - example -school counselor would only send students for outside ADD/ADHD evals. if they passed the Cola test. Standard ADD/ADHD respond to this(caffeine) for 15-30 minutes-student drank all day. Observation by others, not student, of all aspects of behavior with and without the cola. Saved that school district a lot of money.

Self diagnosis - do your homework - be as rigorous as if your life depends on it - it does. Example-ADD/ADHD forget to carry out suicide, but incredibly accident prone and get killed that way. car insurance companies provide that data-you can check on that too.

Accept criticism of your research-quadruple check everything.