I think she is a gift and that no one can deal with this kind of pain continuously. It's been a long haul for them, two children already dead shortly after birth from the disease, and the magic kidney? The drugs give her diabetes and lymphoma! I am angry and worried sick and not very nice right now. She is a beautiful child and I have always celebrated each day of her remarkable life. But this is too much for me to fathom. So right, one minute at a time. It really bites, stinks, sucks, pukes, get the point? More hell for her and mom and Dad. And for my daughter who already has multiple issues, she gets this as frosting.