I can't blame anyone for disliking the term "disorder", I doubt that will be changed anytime soon. I would prefer that PTSD be called PTSI for "injury" instead of disorder. I think that using "injury" will change the way others look at PTSD, and respond to it in more understanding ways rather than the way many fail to understand or react to someone with PTSD.
I don't see any reason that when someone presents as a trauma patient, the information that I posted can't be shared with family members and even the staff where a patient is being treated. I think it is important to even make sure to explain to a patient themselves that they are struggling the way they are because they are injured and that with time they "can" do better.
I have the same challenge as Mowtown where I have a lot of anger and stress about how I was traumatized even further, misdiagnosed and misunderstood by people who are supposed to be professionals. I was especially traumatized about having drugs pushed at me and being told that I "had to" be on drugs in order to be able to get out of that psych ward.
My older sister should have "never" been allowed to visit me and treat me so badly either. You do "not" tell a trauma patient that suffered so much loss that they are wrong to be so upset and will lose their marriage, family, home and everything they have. And then leave the trauma patient feeling that where they are is "punishment" and they are "trapped" there.
It is so hard "with an understanding of PTS" to see my records that discuss what I was saying and yet how the psychiatrist literally punished me by saying I had a personality disorder as if I had "no right" to be traumatized by experiencing so much loss.
I understand how you feel Mowtown, being told you now need to quit your job and give up? That is very much what I had been told but a little differently, that is PUNISHING someone, not HELPING them.
I will never forget when my husband came to pick me up, HE WAS ANGRY, he was not nice or CARING. That long drive home he was so angry with me, mean to me, acted towards me as though I had done something "very wrong". That is how everyone treated me.
When I finally began to learn "more" which was mostly on my own, I arranged a meeting with the second psychiatrist about my records and he did put in writing that I did that and his diagnosis was PTSD, that he could do nothing about what had been in my records from the other professionals that had treated me, but he could have written down what he said to me just before I left, but didn't take anytime to explain, " OE is very misunderstood", he could have said in my records the "truth", that he said to me in person, that I went to the wrong place for "trauma treatment" and even that I was misunderstood there and that I was also there "too long" too.
When I was told that my GP should be able to continue to prescribe Klonopin for me, I did not deserve to be in an examining room with a doctor I had been seeing and trusted for so long suddenly look at me in so much anger and throw my records at me the way he did, telling me how mentally disordered and disturbed I was and he would not prescribe anything to me.
I was so traumatized from that and had all I could do to get out to my car with these records and sit in my car shaking trying to see what was in my records that was "so bad" that a doctor I had trusted and even liked would treat me so badly all of a sudden.
Then, because I "only" was told I had PTSD, and had signed a release, my lawyer had these records, what was he now going to think?
I had so many people ANGRY at me, ANGRY for an injury that was misdiagnosed in ways that were so unfair to me.
I almost was not here to write this because of that. It was wrong to hurt me and treat me so badly "for a very real injury" that really WAS NOT MY FAULT.
When I read this material about being trapped with bullies, trapped with abuse or in an abusive scenario, it was never ending for me. I have been treated so badly for a "real injury", something I genuinely could not help, it's so hard to wrap my brain around it all to be honest. It made me worse, and the worse I got, the more crippled I got, the worse I was treated too.
When it talks about "I can't believe this is happening to me and "why" in this information? I feel that way 24/7, I wake up in the middle of the night with it, and I wake up every morning feeling like that, and I never feel rested either.
I "am" however very grateful for this information and the individuals that took time to learn about me and many others like me. I remember the first time I read it Mowtown, I felt just like you, so relieved that someone of "authority" could explain me the way I had needed it. Yes, everyone around me would tell me "stop being so paranoid", and they really treated me badly, and there really is a difference and it isn't fair to the person struggling to be treated as though it is "their fault", or that somehow they will be punished.
OE
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