Well done for not leaving your body to cope.

And oddly, well done for stopping activity. I find this the hardest thing. I still think I should just do it, as a default position. That it's down to me to find a way to enjoy it or tolerate it or cope with it, whether I want to or not. To try to get myself to want to rather than to just accept I might not want to.

This is going to be difficult for us because I haven't yet explained the intricacies of how I feel about this to my partner (although he does understand the seriousness of what I am dealing with) because he may struggle to know what to do about it - I suspect he will be so terrified of upsetting me that he will make a rule for himself not to do anything at all. Which would be very sad because he is far more inclined to show me physically that he loves me or is attracted to me or is grateful for my support or help or even a nice day out or whatever than to tell me verbally, which he struggles with. I will have to find a very literal but very affirming phrase to use.