Okay, now I understand, forgive me if I had forgotten your mention that you are seeing a pdoc. I think you should see about getting a new pdoc, especially if he or she is ignoring you or not taking your concerns seriously.
Some pdocs are better listeners than others, I think some develop some pompous attitude and sadly, tune us out.
Oh man, I think my past family doctors did this for so long with my health complaints, took 7yrs to REALLY be heard, and it was by the physician's assistant, so I can see that some pdoc's aren't any different.

I send you good wishes for patience,healing, and postive outcome with this, we all know how frustrating this is, hang in there, and feel free to keep us updated.
((((((((( Direction ))))))))))