Ok I will try to make this short but I really need some answeres. Basically I have GAD, some depression, Used to have Panic Attacks, POTS, Fibro, cfs, arthritis. I take up to 4 mg of xanax a day, 2 mg of clonopin at bed, and 2,5 beta blocker with 1 mg xanax and now.5 add on klonopin add on at 6 am. I wake up then with real bad shakes and tremors, feels like heart pounding but not tachy like before the Beta blocker. I have been to 4 neuros, 4 psyc docs, primarys done all kinds of blood work. This has bee going on real bad everyday for at least 3 years. I used to feel shaky and weak and tacky but I could get up. NOw I can't even get out of bed for 45 min. till it stops. I was sent to JOHNS HOPKINNS neuro clinic by my compassionate pcp and he does not know what is is not even a clue! Said I was a MYSTERY in the medical world. Did not even suggest that maybe it had to do with any other part of my body than neuro, like maybe adrenal or whatever. I HAD MORE IDEAS than he did about what it MAY be. Like Exxagerated Anxiety Syndrome , anything for Gods sake! So he referred me back to may psych doc.
She seems not to have a clue except that if it is anxiety I need an antidepressant and I can not for the life of me find one I can take. SSRI make me anxious. I am on to Seroquel recenctly, nerontin, topomax, nada nada, They all make me crazy. So now she gives me Trazadone, and I find out it is more for sleep though, I could use that , but she even said maybe I should get checked for adrenal problems or a better thyroid test. HOW do I get anyone to listen. I had my hub drive me to Baltimore and cried all the way home. WHat is wrong with me? This only happens when I wake up, or of course there is some horrible horrible stressor, which is rare now. Someone please help I am lost in the world with NO LABEL!

Thanks to anyone at all!