Ah, Pre, not knowing is scary! You've been through hell.

Doctors change their minds, they research options that offer similar survival and quality of life without The Big Operation. My H is going through this with a major body part. Right now. He has a life-threatening illness. Two years ago, it urgently had to come out. It's a part you have to have or else rely on external devices to keep from dying. Then three docs consulted back and forth, came up with different options, and he still hasn't had The Big Operation, which we're trying to avoid if at all possible. We find out on Monday if it's time to start looking at new options or if we stay the course with him having regular treatments to keep him going. He's not young. They don't want him to get too old for the surgery. That's a criterion for you right there.

It's just scary as hell for anyone facing this life or death stuff ... and your doctors have not communicated with you well. I hope and pray you can avoid the op while maintaining quality of life and quantity of life. And also that they start communicating with you better. What they put you through by not keeping up up to date on exactly what they saw as the changing best options for you added unneeded stress to you life. This new idea that you may not need a transplant is so stunning that it'll take a few days for the shock to wear off before you can even process it. It's too major to not shake you to your foundations. I hope you'll be prepared with questions the next time you see your doctor.

It's like .... with something like this ... you (or I should say one, a person, me, my H, anyone) you don't know whether to be happy or scared or sad or pissed off. Or all of it. Okay, I'm going to stop now because I experience all of those things myself around this stuff.

Love to You!