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Old Sep 21, 2014, 07:42 AM
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RedBarchetta RedBarchetta is offline
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Member Since: Mar 2013
Location: Moonachie, NJ
Posts: 290
Yes, more for others than myself -
See I have done absolutely nothing about anything since June, and that's fine with me, all anything was accomplishing anyway is breaking things (I will regect anything that dose that EVEN if it dose help the problem - because I want to fix it, NOT trade one problem for another!), or making me feel like someone was looking over my shoulder all the time (again absolutely do not want any part of that regardless of anything), or taking away privicy (this will not do in any situation regardless of why - I absolutely will not even enter any building that uses mettle detectors, x-ray, or anything else that allows anyone other than me to know what I have on me, in my blood, in any packages, basically, I don't car what or why, get a warrant; or leave it alone - refusal equals I won't have anything to do with it.) - but others won't leave me alone about it (in fact it's worst now than when I just complained about not liking it - they are [in part] some of the ones that had said if you are that unhappy about what is being done, get rid of the guy - so I did, and now it's a problem! - I know they expected me to find someone else - but I see no point - it would most likely be all the same things, just a different face) - Now, I have no problem with doctors (but ONLY those directly working for me and with confidentiality in place) say testing urine - BUT the way the get that when need now (I collect in at home, and deliver it to the lab myself) - insist on seeing it - and whatever reason you have for doing that - jest forget about it, because I totally refuse to do that! - If insurance is going to know anything other than who to pay and how much - I don't want you billing them, and I am well below the poverty line as far as income, so I don't have it - but again - I don't care if insurance is paying, I don't want the treatment if it can' be totally private - and not just insurance, I also need to see stuff like if I want to buy a weapon, nothing is revealed, end up incarcerated [that has NEVER come up, but if it ever dose - I need even there medical staff to know nothing, because I would not allow them to even give my the meds I do take regularly unless, again I know them first, trust them, AND nothing [not even what they gave me - and and no "varifing" I actually swalled it ether - for me - it's better to refuse it, then to have to put up with that] - still nothing revealed - basically, keep everything between my and my doctors - with 0 chance of anyone else ever finding out anything, or don't do anything so there is no records to read.
None of that is pshch issues only, but they are the biggest offenders - but for example I have a lot of pain, and my doctor keeps pushing pain management - I won't have nothing to do with that, because the all seem to want to watch while getting urine for a drug test (and that gets done anyway, but I brig it to the lab from home - and that makes all the difference in the world - pretty much if you are not going to trust me to give you urine that if real and not messed with, than I am not going to trust you to play with, or do anything - and yes I have heard 1000000000 times it's not them, it's the law - I saw, they blame the law for me not accepting it, but I am not going to be made to feel like that. Yes the pain makes me almost not even human, look at my wrong while it hurts, and I don't mind verbally cutting your head off, and I don't like that - but being watched so closely is even more uncomfortable to me.
Also with other health issues, I know I should have gone to the ER a few times - I did not, first because of the way they had acted before once the saw psych issues, AND the use of GPS tracking on patents - again make me feel as though I am being watched too closely, so I would rather have nothing to do with it. In fact, I has admitted a few times before they started using GPS, and that bothered me (the sicker I am, the LESS I hant other people hanging all over me), and that promped me to avoid it unless I was totally sure it was going to be something like "go home and take these pills and you will be fine", but I I even have a slight sispion they might say stay - I would rather you don't even look at it. (And I still say those times it really wasn't needed - it was a IV, every thing was light and small enough to fit in our car - so my way to be comfortable about it would be I'll take it all hmae and stay in my own bed and do it - if you absolutely need the bllod work every day, fine, even sick and week I'll get myself to the lab every day, but I want to be in my own bed - and if you're thinking send an RN to my house, that's only going to work out if I am not going to hear stuff like "don't even try to walk without help", or "You are too sick to go to the store yourself".
To sum it up, don't break anything, don't EVER make me feel as though I am being watched any more closely than before you did anything, and keep EVERYTHING just as private as it was before I mentioned it at all. And if you can't than just don't do anything. Sorry but privacy absolute has got to be first on the list of priorities, before regulations/safety, even before dose it even work, second is dose it break anything with it, third is anyone going to treat me any different in any situation because of it, and then I'll worry about how well it actually works.
Oh, and another quick point on the medical side - it just so happens I do have both a urine leakage, and retention issue - the leakage has been there since birth, and the worst thing I could even see happening because of that is a little bit of embarrassment, retention on the other had, can damage a lot of things (including kidneys due to the extra pressure) - and urologists keep handing me drugs that A.) break other things. B.) Actually cause retention. - they say it still lessens the pressure, just volume goes up, and the point is to hold it back and drain with a cathitor - but that was AFTER explaining I don't care about the leakage that's has been there forever, but the retention is fairly new (about 5 years) and that is what is bothering me, and the point is to eliminate the need for a cathitor while still maintaining appearance and functionality of everything.
If the cathitor can not be eliminated, at least reduce how often (right now I am at 3 times a day, at lease get it down to 1 time per day).
But in that case, not only are they not helpful, they are actually worsening the main thing they are suppose to be attempting to fix.
Well, don't know what anyone else has to say (but I will check) - just mainly hoping - since those other people that won't leave me alone mentioned it) now that it's hear to see responses, they will shut up already. I personally, that's just how I feel about it, and actually would prefer to do nothing than put up with any of that, and second choice would be to work out-side of the law and eliminate doctors even knowing anything about it, or at least put them in a position where there are NOT in control of anything.