Sorry, I've never heard of this disorder before, but it certainly doesn't sound like it's pleasant to have. I myself have been cursed with fibromyalgia and degenerative disc disease, and arthritis. It started in my early 20's, and just continually got worse from then on. As if the pain wasn't bad enough, what makes it even worse is people accusing you of faking your illness, especially family members. They're the worst. So I'm so sorry that you're going through this. I know that it must be a very difficult situation for you. I hope that you at least have a good support network to help you through this. If nothing else, just that we are here for you anytime you need someone to talk to. I'm usually over on the depression forum posting there if you want to find me. Hopefully you'll be feeling better