SO sorry to hear you have to keep going through this all Mimielam. I can partly relate as I am a rapid cycler so I never know how I am going to feel when I wake up, or even this afternoon. It is exhausting and straining on relationships. All I can say is keep fighting and keep seeking different treatment options that may make you life just that little bit easier. I am still at a loss as to what to do with my situation but recent med changes have helped a bit and I am in therapy to help me deal with the illnesses I have. Be kind to yourself, it is a really tough illness to deal with. You have survived this long so you must be very strong. Take care.