I'm sorry I don't have any helpful advice for you, but I wanted to let you know that you're not alone. My ED takes on a similar form, and controls my life majority of the time. Who am I kidding, yeah all of the time.

It might be worth seeing a GP and getting a Pdoc referral? Medication isn't always the answer, but it can be beneficial. Honestly, I'm only just seeing one again now and not giving up hope. It's the underlying issues that we starve or b/p behind, and working on them is what can (hopefully) help us in the long term. Hugs.