Fellow EDS'er here with early-onset arthritis. It's not a lot of fun, but there are ways to manage the arthritis, if that's indeed what it is. If you can take NSAID's, that's a good starting point. I took Celebrex for a while, and it worked really well for me. (Unfortunately, I had to stop taking it when I got ulcerative colitis, as it can make ulcers worse and started giving me really bad reflux.) I've gotten significant relief from steroid injections, too--they've given me as much as 9 months with no pain in the joint where I got the shot. Lidoderm patches help some, as does heat.

Are you doing PT already? I know it can be hard to find a PT who knows how to deal with EDS patients, but if you can find a good one, that can help a lot too.