I have a neurologist as a matter of fact after I spent to weeks in a pysch ward, and they tried desperately to contact him regarding my meds and he refused/fell to reply I fired him and got a new one this summer.
Omg!!! You have made my day. I’m not crazy crazy, just crazy. There are other things. My lips and tongue get numb; it feels like my skin is crawling especially on my face. I smell smoke, ammonia or something that smells so bad it almost makes me gag; sometimes I smell lilac or gardenia, no one near me smells these things. I get very, very paranoid like something bad is going to happen. I have had fits of rage. I laugh and cry at the same time. Both sad feeling and happy feelings are simultaneously happening. That’s impossible. Now, I have heard voices, they don’t tell me what to do, they just call out my name.

The ringing and sirens in my ears got so bad that my primary doc sent me to an ENT and he said it was tinnitus. Also, objects bend (warp) and fold. When I drive in the early morning, or late evening, the white/yellow lines are raised off the ground. And most of the things that happen seem to happen between 7am and 11am, or 8pm and 10pm.

I stopped telling my (old) neuro doc and psych doc about the things that happen. I went in for an EEG this summer and my insurance would only pay for 2 days. My new neuro doc wanted to do 5 to 10 days to catch an episode. I have had 3 outpatient EEG’s and all were negative or inconclusive.

I have been on depakote, kepra, and a few other meds. The depakote worked the best, but I started loosing hair and gaining weight at an alarming rate. I thought it was also making me more depressed than normal.

I feel so much better. I don’t know how to thank you. Tears of joy are streaming down my cheeks.

Why won’t the doctors tell me that my symptoms are seizure related?
Why are they so quick to tell me that I am bipolar and schizophrenic?
How do I get them to see that I am not hallucinating?
I am depressed, deeply depressed I will admit that, and my family has a long line history of bipolar so perhaps these issues are magnified off the chart for me?

I am so glad I posted this. I started not to. I get so tired of telling people what’s going on only to have them stare back at me like a “GHOST”.

One more thing, my cognitive skills are declinning. I dont have addhd, but its like all of a sudden i cant do what I use to do nor can I stay focused for long periods of time. Im very forgetful, I get confused easily and of course I make a mess of my meds.

I am so grateful that you replied to my post. A ton of weight has just lifted up off my shoulders. THANK YOU!