I know a lot of parents of children with special health care needs, and what you're sharing is painfully familiar. If you were in the US, you could get matched with another parent through a support program (Parent to Parent). I can't find any in Canada, but often hospitals have parent support groups. Or find a P2P on facebook to join. The good thing about a program like P2P is that they match parents who are further along in the journey, even if it's not the exact same journey. The emotions are the same. The fears and struggles and exhaustion.

Thank you for sharing what you can of your story. I hope you get the support you need, not just here and in therapy, but from other parents like yourself.