You don't need to find parents who have a child with the exact same condition in order to get support and understanding. You might be surprised by how similar the challenges are. If you are on facebook, do a search for parent to parent or special needs children or parent support. I'm sure there are also yahoo.ca groups. You don't need someone in your community in order to find support and understanding. You can find it throughout the world. It doesn't diminish the specific challenges and pain you're going through, but the commonalities will help you feel less alone.