i am so sorry that nobody seems to care about what is happening to you and you are left all alone when you need them the most.

what you said about "crying wolf" too many times probably explains it, but lets try and stay away from the negative connotation. if they have been dealing with medical issues repeatedly with you, worrying again and again, imagine what this has done to their emotions. while they may seem cold, callous and distant, can you see it as a protective factor for them, a way for them to cope with the roller coaster they have been on with you? as difficult as it is for you to deal with the constant let downs and pain and everything involved with misdiagnoses, your family is having to deal with this as well, on top of the powerlessness of not being able to do anything to help you. it becomes too much so they just shut down. refuse to deal with it any longer. are you able to see it from this angle? it may be that they just dont care any longer, but maybe not..

so maybe putting together some information on the genetic illness you have that explains how it mimicked all the other things you were diagnosed with, so they can see how it looked like you were crying wolf, would help them understand. just educated them on how this now explains everything. then they will see how you were not "faking it" all along. a little education goes a long way. email it, whatever it takes to disperse it. then you have done everything you can. if they really care, they will read it and come around to help.

i hope your surgery goes well.take care.