Hooligan gave great advise.
I am so sorry for all you are going through. I'm more than twice your age, but I relate to nearly every word. I went through much of the same, dealing with this illness at your age was very tough. Getting more answers on what you have, or at least working with a professional to try and ease some of your symptoms is a step in the right direction. You have the possibly for a long and wonderful life. The key is to get the help you need.
My heart breaks for you. You are so young and should be enjoying life more. I hope you find a good doctor who is willing to listen to give you a more definitive diagnosis and help.
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