Hi MaggieS. I'm so sorry this is happening to you. I have several different medical issues & have experienced a lack of compassion and support from those around me. I will say that my parents, who came from a time and place that didn't really understand some of my health issues, did eventually come around to a place of understanding. One thing I realized was that the pain of watching your loved one suffer can cause some pretty thick "mental callouses" to form, especially when it's a lifelong problem.

It sounds like you do have people in your life who do care. Please try to not let the negativity of the naysayers cloud the positivism of your supporters.