These are all understandable. And you're absolutely right, anyone who is not providing treatment should not have access to your information unless you've granted it--and you have not.
Most states have a low income legal assistance program. I wonder if someone can help you look into the sharing of your information? A Disability Rights organization can also give you a referral, if you want to pursue this. It sounds like you're not being treated with any respect for your confidentiality.
As for medication, yeah. They will cause other problems. If you have a provider who listens and respects your wishes, though, there are often ways to find the least horrible option that can have more benefits than drawbacks. Not saying it's easy.
I hope you can get the peace you need and deserve.
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