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Old Feb 18, 2015, 03:01 AM
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jaynedough jaynedough is offline
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Member Since: Feb 2010
Location: Diagonally Parked in a Parallel Universe
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ForeverLonelyGirl,
I'm sorry things have been going poorly for you and your family. I don't think you're cursed, even though it feels that way. I frequently feel like I'm a curse to those around me. The sad truth is that bad things happen. It's not your fault.

In case you haven't run across these 2 websites, the first one is National Organization for Rare Disorders. I know that a long while back, they offered "scholarships" to help pay for IgG. IDK if they still do, but at any rate, they're a great resource. The link is: Welcome to NORD ? National Organization for Rare Disorders . The second is the Myasthenia Gravis Foundation of America. Home

I know there are forums here that can help you navigate your way through this dark period. There's a whole seperate area for neurological issues. Finding a support group for family of people with MG would probably help you. Also, if you're not seeing a T or PDoc, you may want to find one.

I know that you're hurting,. I'm so sorry. You have survived an awful time already, so you do have strength inside you. I'm sending a very tight bear hug to you. Please take care of yourself.
Thanks for this!
ForeverLonelyGirl