I just read more about the disease my son has last night and it hit me hard. Pretty much the first 3 years can result in intensive care hospital stays, respirators and possibly death. If you make it through the first 3 years then things sort of level out.

I just keep crying. Now I need to tell my younger son. I don't have a therapist and unfortunately my son that is sick will not see one unless he changes his mind. I do plan to try to find one, although that process is rough.

One day at a time I guess.