I don't mean to stand on a soapbox here or anything, but ...

I don't think it's fair for us to say she does or doesn't have anything, no matter what she's posted on another forum, so let's try to refrain from this. It can take a long time to diagnose autoimmune conditions, but the suffering in the meantime is real, and we aren't doctors. We don't and can't know whether it's lupus, fibromyalgia, or something else. Again, not trying to stand on a soapbox here or anything. I just think we need to grant others this common courtesy on the web of not assuming what we think their illness is or what it's not, no matter how sure we are based on past posting. It's not fair to anybody.

Okay, stepping off the soapbox now...

I read through all the posts on Lupus of America forum, and I agree with the previous couple of posters for the most part. From what I can see, many individuals were trying to be helpful and simply delivering some of the frustrating news they know to be try about the US medical system. There were a few bitter posters who could've been MUCH MUCH nicer to you, yes, and I'm sorry they weren't. I'm sorry you feel ridiculed by them. That's never a fun feeling.

That said, I've noticed that you tend to jump to feeling as though others, your grandmother and other posters, are against you. Feelings are feelings, and I'm not discounting the frustration and torment these feelings cause you, but please try not to assume we're against you when we give you advice. Some posters are very blunt in the advice they give, and it might trigger some feelings of resentment, but most of the time, even they are trying to help you.