Thanks bird_feeder, that's something interesting I never considered.. never heard of arnold chiari malformation but I'll read about it. I've had an MRI and CT scan but that was to look at a problem with my left TMJ.. never got a clear answer on why I have such a hypermobile jaw and eventually I stopped asking.

I know this is stupid question, but any suggestions on how I can ask to get a brain MRI? I'm extremely passive and most doctors are intimidating.. When I asked my neurologist why I have dystonia all he said to me is that there's no way to know what causes dystonia.. he didn't saying anything about running some diagnostic tests, he just gave me a prescription for clonazepam and sent me out the door with plenty of unanswered questions.