I haven't had an MRI of my brain or brainstem but I agree that would be a smart idea to ask about that. My first appointment with a neurologist was in January, I'm seeing him again in April. The clonazepam has surprisingly been helping my type of dystonia to an extent... unfortunately the bad side effect has been that the clonazepam has significantly worsened my pre-existing depression. I've always had problems with self-loathing but it's at a level now where it's as bad as it can possibly get..also experiencing suicidal thoughts, I haven't attempted I just feel I'm so done with this life and that the world would be a better place without me in it.
I also have a psychiatrist appointment this Monday, will talk to him about it too, but my psychiatrist is not usually much help to me.. Thanks again for the replies, I very much appreciate how helpful everyone has been