
Mar 19, 2015, 08:18 AM
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Member Since: Feb 2015
Location: Eastern US
Posts: 472
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Quote:
Originally Posted by pande882
Im in the same category as you meaning ive really immersed myself
into all of the published info about POTS. I feel based on the new research, leaked info, and success of midodrine, that POTS is clearly its own sutoimmune disease classified by alpha antagonistic and beta agonistic antibodies. Unfortunately for me I just cant sleep without trazodone or remeron.. Unless i take xanax. I also take melatonin and benadryl nightly. I really need to know the lesser of two evils, traz or rem, when it comes to which is more of an alpha antagonist. I think youre right, its probably traz. I think a lower number means more of an affect. I also think the 'cure' for pots is PEX, IVIG or maybe prednisone combined w exercise.
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It sucks, right? I'm done the steroids and IVIG with limited success. Honestly the thing that's helped the most is the three times a week IV saline infusions. And I drink plenty of water, but the IV part I guess is supposed to improve the cerebral perfusion that's diminished a lot of times in POTS. I've taken both remeron and trazodone and had a lot more issues, a lot more morning after fainting episodes with trazodone if that helps any. What's PEX? I'm not familiar with that?
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