Quote:
Originally Posted by Bill3
In your family you were always the one responsible to help others, it feels alien and embarrassing to need to receive, and to receive, help from others. To have a "mental illness" is impossible in the eyes of family members, so it is very tough to believe and admit that you have one. You need to be fine in order to believe that you are in control.
That was another thing mentioned in that article: control. What is your thinking about that right now?
What would it mean if you were to admit how sick you really are?
Thank you for your thoughts about having a job. I'd really like to hear back on that when you are ready, if okay.
Okay, that is the reality of the situation: You will need to deal with it. Tell me about that: What does it mean to you to hear all of that from them? How might you deal with it?
Yes, the locked unit, not the event.
Are you familiar with safety behaviors? When something causing anxiety, there is a temptation to defuse the anxiety by avoiding the situation. So if someone is anxious in a crowd, they go food shopping at 7:00 a.m. That is a safety behavior. They avoid that anxiety, but they never face or cure the problem, it just persists indefinitely and their world gets that much smaller. The solution generally involves facing the fear, living with the anxiety, towing it along, if you will, doing what makes one anxious (in real life and/or in imagination), and over time the anxiety goes down.
Of course, in addressing causes of anxiety one generally starts with lower anxiety issues and works their way up a "fear ladder".
I of course expect you would be panicky about being in the locked unit, and maybe it is too big of an anxiety/panic for right now. But see if T can help, talking it over could be a very positive step.
How did you decide on JHU?
Yes, I think that most Ts are going to want to discuss the past with you to some extent as part of treatment. I think that a lot of the past is intertwined with the ED and needs to be understood and unraveled.
I completely agree that it would be best to discuss it with the T you know and trust. I wonder if that could be done by skype let's say at an ED unit. Or maybe by chat/email with her, like what we are doing. Or what about Ts at units: do you ever get to trust them over time--or no?
It is quite significant that you can trust her implicitly, and really good to hear.
But what about talking with me? You have been able to be candid with me about many things. It seems that you can trust me to some degree--and I hope always to be worthy of your trust. What is it like for you to speak with me?
What sort of help and attention did you get growing up?
What bad things do you think would happen if you got well and did not get the attention that you think you need?
Fear of success is a known phenomenon, but I don't think that it has to do with "just getting over" the very rough things that happened in childhood. I think you can be very hard on yourself.
Here are a few thoughts on fear of success. Sometimes people who have survived a rough/traumatic/tragic situation feel survivor guilt when they think of those who did not survive or whose lives were even more shattered. They might not want to succeed then, because success could increase the guilt.
Another possibility is that in your childhood you were never considered good enough, you always fell short of perfection and were criticized for it. So "I am not good enough" might be like the air for you: it is just always there, it is what you grew up with, it is what you take for granted, it is a core belief. To succeed is to question the very basis of your life, to question your most core belief about yourself. It feels alien and disorienting.
I want that for you too.
Okay good, when you are ready. I think there is a lot to be learned from looking at what happened.
Yes.
What happened growing up if someone in your family did in fact fail at something? Or maybe that just never happened, it was utterly unthinkable?
Obviously.
It is okay, your health is the most important thing. I hope that you feel better!
Good. Thanks for letting me know.
If it is okay, I would like to ask about two small things in connection with how you present yourself here. First, how did you choose the word in your screen name, pinkflower? Also, it interests me that you use the magenta color in this thread. Thanks! 
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I guess I chose my user name for a couple reasons. One, I use a very specific user name a log-in of most of my both personal and professional stuff (probably stupid, I know) and I wanted something completely different. I guess, pink is my favorite color by far, and ....I like flowers? I do like specific flowers - peonies, hyrangeas, most of the various kinds of roses, cherry blossoms, tulips, sweet peas, ranunculus etc ( I was planning for a while which was supposed to be this month. Yet another reason to hate april). I guess I didn't want anything anyone could possibly relate to me, so that I think this of anyone else, but I am embarrassed to have a medical illness).
Yes, people did fail in my family, but it was never "okay". We were never told; "I'm proud of you anyway or I know you did the best you could or God forbid, "I love you anyway". It was more along the lines of "what happened?" Or "well, that sucks", or "what happened to the rest of the points?" (If a grade wasn't 100%) or just lots of yelling an screaming about what a failure and screw-up we were, mostly me. I was the oldest, I tried to take the brunt of the anger for my brothers, tried to protect them, and I was also blamed for their short-comings for not "raising" them correctly. I was 9 when my mom got sick, 13 when she died. My dad had a lot of anger that he was forced to take care of all these kids that I don't think he really wanted, and was bitter than my mom was so sick and I think blamed her a lot for it. She was a type I diabetic with an eating disorder and never regulated her blood sugars the way she should have or could have. I know I blame myself for her death for not "taking care" of her better, but I also blame her for not caring enough about us to want to stick around and make sure we were okay. Does that even answer the question?
What happened after residency? I think it was multi-factorial. I lost a lot of my friends/support group as they moved away, I was forced to grow up and had a lot of responsibilities, essentially responsibilities for life and death that I just don't know if I was ready for and I think the main part is I felt really alone and stuck. I had gotten engaged during my intern year, and my ex-fiancé was verbally abusive and toed the line towards physical abuse and there was no one I could tell, no one I could talk to about it. I just felt really, really alone. I was in a new town with new people with a less than supportive staff, after coming from a very supportive administration and staff and I think all of this played a role and I just retreated into what gave me comfort, what was familiar, what I knew and it quickly got out of control. Does that make sense?
Sorry this is jumping around a bit, but my feelings regarding control haven't really changed all that much. I really still feel like I'm in control. If I really think about it rationally, I know I'm not, I know I'm out of control and I need to do something to figure out how to get myself back under control, but that scares the **** out of me and right now, I just can't admit that, despite all evidence to the contrary, I can't admit I'm not in control.
I've never been good enough, I've never been enough. At anything. At anytime in my life. It is a core belief, I can't even imagine thinking any other way and it's definitely been reinforced by those whose opinions matter most to me in my life. Even my doctor (see my PM), doesn't believe that I'm good enough or that I'll ever accomplish anything or be or do anything worthwhile in my life.
I didn't realize fear of success was that common. I always thought it was more of a fear of failure. I absolutely have survivor's guilt. I don't feel like it's right that I'm still alive when others I cared about aren't here and would probably be leading much more productive, successful, happy lives. I feel like they should be alive instead of me. I feel like God made a mistake and it should have been me who was killed and not others. I don't really know why I'm so scared of succeeding. Maybe because then, I'll have to face the reality that, while it sucks that I cooked the meals, took care of my brothers, got them up in the morning and put them to bed, paid the bills etc while my mom was sick and dying, it's over with and done with. I lost most of my childhood and I'm never going to get it back and while that does suck, it's reality and I need to learn to deal with it.
I think if I got well and all the attention in my life ceased, I'd probably honestly relapse. My family just doesn't give much positive attention to positive things, they've just been kind of expected. I suppose I need to seek out that attention in a positive manner through other means and other people, but it's just hard for me to do that, when it's been ingrained in me that my family loves me....but only when I'm sick. If I get better and my family ceases to be concerned, I guess I'll just cease to matter as well. And if I don't matter, there's really no point in me trying at anything - getting better, living, anything. If I'm not making a difference and I don't matter in this world, then why the hell do I even have to be here?
I didn't get much help or attention growing up except for negative things. I went through a very brief "bad period" because I think I was looking for attention, but that just resulted in a lot of yelling and other bad things.
My dad actually got child protective services called on him twice while I was growing up. More or less for neglect. The first time because he refused to put any of us in counseling after my mom died, and her death was pretty traumatic and one of my brothers had a very difficult time with it and the second time was when I reached a dangerously low level weight wise (think less than 3/4 of low triple digits) and my dad once again refused to put my in counseling or any kind of treatment. He tried to buy me milkshakes a couple times, but that's it. This was the early 2000's, so all that came out of it was a home visit (and they pretty much blew that off bc my father's a prominent attorney) and 3 visits with my guidance counselor. When I won track or gymnastics meets, I got a distracted "good job", when I got A's, if it wasn't 100%, I got asked about what happened to the other points etc etc. My father's and my relationship was very much more of an equal adult team, rather than a parent child, and any needs I had were pretty much swept under the rug. It's easier to ignore problems than deal with them.
Yes, for whatever reason. I'm almost completely comfortable speaking with you. I don't really know why. I have huge issues with abandonment and with being rejected. I'm always afraid to post anything about myself, to put myself out there, so to speak, because I'm afraid people will be horrified and disgusted and I'll be "too much" and nobody will be able to handle me and I'll lose what little support and social interaction I do currently have in my life. I guess it's because you tend to "show up". I'm always incredibly reassured when I see you're replies, it makes me feel like I didn't make a complete food of myself yet again. I have a very, very difficult time trusting people, but once I do, I tend to trust them almost implicitly, at least until I have a clear cut reason not to. I too, hope I'll always be able to trust you 
Regarding the whole job thing; could I handle a high stress, full time job. No, absolutely not. I didn't even get out of bed yesterday after I was discharged, buy could I handle a low stress part time, like 10-15 hr/wk job? I think so. And I think it might be good for me. It would provide some accountability, it would give me a reason to get up in the morning, it would help financially, hopefully it would give me some sense of accomplishment and achievement, get me out of the house for things other than doctors appts and give me some more social interaction. I think ultimately, it could be a good thing, as long as it's low key, and kept under control.
Regarding the locked unit, yes, I do need to deal with it, but I don't have the slightest idea how and I don't even know where to begin. I'm terrified just at the idea of thinking of being in a locked unit. I honestly don't know if I can deal with it. I really don't. Yesterday was the worst day of the year for my PTSD and it's very rampant right now. The only thing that comes to mind is medicating myself throughout the whole process or just trying to ignore the fact that it's occurring. I don't think that will work though.
Are you talking about desensitization therapy? I get the idea behind it and agree theoretically it should work, but you can't desensitize oneself to what I went through. I just don't know how I'm going to handle it. I think my best option is to discuss this with my therapist and relate to her that I'm never going to discuss the instigating event and I'm absolutely not willing to discuss anything related to it with the interim therapist and leave it at that and just immediately change the subject if it's ever brought up. I have to protect myself and that's the only way I can see myself being capable of doing so.
I decide on JH mostly by default. I was rejected by many major treatment centers due to current and past medical stability (the central pontine myelinolysis, the esophageal ruptures, the boerhaave syndrome and mediastinitis, the electrolyte abnormalities and cardiac complications, the heart attacks, the blood clots in my lungs, legs and arms, severe asthma and food allergies, chronic head and neck problems form the brain surgery and meningitis, the history of re-feeding syndrome with congestive heart failure, the seizures and myoclonus, the nerve damage, the overwhelming fatigue , the dependence on the IV fluid and tube feedings etc etc,etc). I was all set to go to Princeton, but then they got my medical records. Most are terrified something horrible is going to happen again. And it very well might. So I need to be in a large, tertiary care hospital with very advanced medical care available at a moment's notice. So, John's Hopkins it is. I'm not thrilled about it. I'm not a huge fan of their program. I would have much rather gone to Princeton, but I guess we don't always get what we want in life.
I would much rather deal with my current therapist while in treatment over Skype or something else, but she's very professional and I know she won't want to step on any toes and will reserve my treatment while I'm there to be done by therapists there, good, bad or indifferent. I don't agree with this and I really wish it could be different. I will bring it up, but I'm 99% sure of what the answer will be.
I think that's everything. I'll answer the stuff from yesterday tomorrow. Today was a very rough day. It took everything I had just to type this e-mail. Frankly, all I want to do is curl up in a ball and never wake up. I'm just not interested in living anymore. There's no point. My life has no meaning and is never going to and I'm really just tired of trying. Sorry to be so negative.
Thanks so much for your reply. You have no idea how much it means to me. I really hope to hear from you soon.
Kirstyn
Last edited by pinkflower17; Apr 21, 2015 at 10:30 PM.
Reason: color
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