Oh, I know just how you feel, have hit those deep PTSD lows myself. That is when I feel the lonliest because it isn't something one can just call a friend about and get the kind of support so much needed, a "I hear you me too", is so elusive yet so needed.

The "only" medication I take myself, and only when I get so low I am in physical pain and really just need to shut down, is Klonopin. I don't take it unless I am not doing well at all managing the symptoms and ofcourse my family is not helping but only adding to it, my husband can do that as he can be controlling and absorbs and pretty much does all the wrong things which just makes me even worse. However, what I have noticed is that when I "do" take it and get that much needed break, I realize how much the anxiety/stress has been such a culprit to me becoming that bad. So, I try to again do better at managing it, with an understanding that I do have to be "more" patient with myself, and yes, that can be hard work, something the average person simply doesn't understand.

What else is going on in your life Sally, anything you can vent, so you can get support with it from others who understand the challenge?

((Hugs))
OE

It takes time for a person to figure out what does "help", from what I have read everyone is a little different, some actually do better without medications. That is what I have been doing, but as I mentioned, keep some Klonopin handy in case I have a really bad cycle that I can't work my way out of.

You do need to make a pest of yourself with these healthcare people, sadly they do get overloaded and it "is" easy to fall through the cracks.