Perhaps now that u + docs have a dx it's time for your kids + spouse to talk to your doc. Let them hear it from a professional. With or without you present. A friend went thru years of changing dxs. It was hard on her as well as her family. When they found out what it really was, she asked her doctor to call her husband and the dr was quite willing to do it. You r going thru something very difficult. If it's genetic, then your kids need to know. You seem so calm + strong. Please keep posting + let us know how u r doing. Healthy thoughts and wishes being sent your way.