Thread: Seriously
View Single Post
 
Old Apr 30, 2015, 07:37 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,211
I'm still new around here but I think you know I'm pretty unstable. Most of the time better than I used to be when I was working and before the blessing of menopause but still very unstable and extremely hard to treat. And for most of my adult life I have been very unstable, on and off different meds and various doses, trying anything to get some stability.

But even with that I can say it IS possible to get a lot better if the meds just get to the ideal place and you happen to be in a good place too. In 2009 I was started on an MAOI (Emsam) and because it was stimulating my Seroquel was doubled to 600 mg and I changed from ativan to klonopin which was a really good change for me. I was also taking nuvigil and I kind of think that started about that time as well. That combination of meds (plus lithium and side effect meds) made me really well for the first time. I still struggled with work but I was able to really enjoy life. I slept on a routine schedule. I lost weight and kept it off for a long time. I was just in general happy and people did not know about my illness. I wasn't wearing it on my sleeve anymore. That lasted over a year and then I caught whooping cough (allergic to the shots so I didn't have them in full doses and didn't get immunity) and was physically really sick for months. I was also have gyn issues at the time and so physically I wasn't nearly as good as I was psychiatrically for a change. But I still did great up until a drug we had no way of knowing I'd react to was given during surgery for the gyn issues and that was the end of my good time. But I had an entire 14 months of doing GREAT and it would have gone on longer if only I wasn't allergic to those shots and if they'd given zofran instead of reglan during surgery.

I called that time "my miracle" and I really believe it was. I wasn't able to do anything i wanted but I definitely could do most things without having to think about whether I was well enough to do it. When I told my supervisor at work that I had bipolar as part of explaining why I would be off work for extra time around surgery (I thought I had to go off the MAOI for 2 weeks before but was able to go on a special protocol to avoid that) she was visibly surprised and said 'well you sure cover THAT well". Nobody had ever said that to me before.

So don't give up. The right meds in the right doses can make a huge difference and did for me even after I'd been on a good 40-50 cocktails by then over 11 years since I started treatment for "depression".

There IS hope, lots of it. There are so many meds now and new ones coming out all the time. Just 13 years ago there were I believe 3 meds approved for bipolar. We've come a long way since then and new stuff is due out soon. There is always hope.


Quote:
Originally Posted by cashart10 View Post
I had a psychotic break when I was 14. It took about 4 years to recover. I had only mild symptoms of bipolar after that until 3 years ago when I had another MAJOR psychotic break. I was seriously extremely stable (besides a major postpartum depression and some mild depressions and hypomanias) up until that point. I home schooled my daughter, niece and good friend's little girl for preschool while keeping my toddler son and nephew. I home schooled my daughter for kindergarten also (during some of this time I was extremely out of my mind and didn't realize it). I maintained my house, cooked dinner and played with my children. I don't mean to brag, I am just trying to make a point. I do none of these things now. I have been a total mess, sometimes completely insane, for the last 3 years and I don't see an end in sight.

My point is I had such long periods of stability despite my extremely severe episodes. Has anyone else had such long periods of stability? Did anyone go from completely together to a psychotic mess in a matter of weeks? To me, it is so bizarre.
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Hugs from:
cashart10
Thanks for this!
cashart10