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Old May 08, 2015, 08:24 AM
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Homeira Homeira is offline
Grand Member
 
Member Since: Oct 2014
Location: Bergen
Posts: 755
I am very open with my family, which is a large one... A lot of aunts, uncles, nieces, nephews, brother, sisters etc... I want to break the code of silence that has reign in my family about how we are genetically predisposed for this illness. Several people amongst us have BP. Big family-secret before. Not so much anymore. My brother has BP also, and we have made a joint effort to enlighten our family members about it. I feel it is very important for the new generation in the family, they must know about this, so they don't have to go undiagnosed and miserable for years, like me and my brother did.
Outside of my family, only a few people know. I am very selective about who I tell. I don't have a lot of close friends, but they know, and they are supportive and understanding.