to all who need them
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Originally Posted by justmeandmyhead
Has anyone else read Elyn saks's book The Centre Cannot Hold? It's very good. I've read it before but I'm guna try and read it again.
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This is my favourite MH book that I've read and I really related to it.
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Originally Posted by Atypical_Disaster
My favorite book about this subject though is The Quiet Room by Lori Schiller % Amanda Bennet. Lori actually has schizoaffective disorder bipolar type instead of "just" schizophrenia but this book blows all the misconceptions about schizoaffective disorder being more "mild" than straight up schizophrenia out of the water. I don't want to spoil anything for people who haven't read it but it is a very intense book and it's... so much like me and what I've gone through that it's downright eerie.
I related a lot to Elyn Saks also, her thought disorganization is much like mine is when I'm not stable.
Welcome Silence by Carol North is another excellent book about schizophrenia, she had a lot of catatonic symptoms so I related to that quite a lot.
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I read The Quiet Room several years ago, before I read Saks' book. I remember thinking it was good, but I don't remember relating to it as strongly as The Centre Cannot Hold, but it was YEARS ago now so I can't really remember a lot of it. I remember she got restrained a lot, but that's about it.
I will have a look for Welcome Silence; not heard of that one. I read Dark Threads by Jean Davison, which is the horrendous story of an 18yo British woman in the 1960s or 70s who was having an existential crisis and got misdiagnosed with sz (she had no hallucinations or delusions or anything - I have no idea wtf those pdocs were thinking?!) and lost 5 years of her life to psychiatry before she could escape. It is a truly awful story, but well written if anyone fancies reading it.
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Originally Posted by Atypical_Disaster
Now I'm having to accept that I have fibromyalgia... not fun, but it is what it is.
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My Mum has had fibromyalgia for 15 years. Have you heard of the Spoon Theory? My mum found it helpful to think about pacing and to explain to others. It's a controversial diagnosis here - and is the diagnosis that the pdocs wrote in my notes is 'made up' without even meeting my mum.
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Originally Posted by junkDNA
im not sure about med free. my guess is that ssdi wouldnt really like that. they want to see that u are very sick and in proper treatment for it. as for me, i would like to be med free one day. but honestly i dont know how feasible that is
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The Govt here want to make it mandatory to be in treatment to get disability, which I think is wrong. The med debate is simple in principle, but hard in reality: which is worse? Personally I don't think we only get 'one shot' to be med-free, regardless of diagnosis: it's our body and we can do what we want with it!
I think meds get pushed so much because they are easier to dish out and cheaper than therapy/learning coping skills, but they're not the only solution. Sometimes I think pdocs deliberately taper too fast so people can't cope, think they're relapsing and go back on meds; continuing the stranglehold psychiatry and the medical model have on mental health care. Either that, or a shocking number are completely incompetent!
*Willow*