Yeah, that's actually hopefully happening in 2 weeks. I go to a very large hospital that doesn't allow the staff drs to have samples unless they are for a specific patient with a specific situation. I can't afford the med we're planning to try (Latuda) so will get it from patient assistance but first I have to try it on samples. So my dr had to request the samples specifically for me and the Latuda rep had changed so first she had to find out who to contact then get the samples. I don't know if she has them yet or not; she's been out a lot lately. I think her daughter may have graduated from college and she has some health issues that require testing about this time every year. Anyway, normally she wouldn't ask me to stop by for the samples b/c I live 2.5 hours away. If she does have them now I may need to make a trip up to get them.

We have tried 2 APs before without any effect. I was on 800-900 mg of Seroquel and 10 mg of Zyprexa along with various sedatives (kind of like now) and it did absolutely nothing. I also tried Seroquel/Latuda once before but I was extremely sick and didn't stick with it long enough to have any idea if it worked. I was too suicidal then to continue a new med and trying to adjust. So I'm not sure how this will work.

If she doesn't have Latuda which is by far my best choice I'm going to ask about loxapine which she said once should be safer with my extra-pyramidal symptom risk or if we can do something like haldol and just start cogentin from day one to see if we can prevent EPS. I have no idea how she'll feel about that; avoiding neuoroleptics has always been higher on the list than if we could attempt one with pre-emptive EPS treatment. But the day that I ran out of safer options has been coming for a while so I'm sure she has ideas in her head that I don't know. Clozaril has come up a number of times but she's always said she doesn't want to put me through that. I don't know which comes first, avoiding EPS or all the Clozaril issues (which can cause EPS on its' own too). And I don't even know if my Med D pays for Clozaril at a level I can afford.

Sorry, thinking aloud. But yeah, that's the plan it just had to be delayed a month from making the plan to implement it. I even tried to get it from my family dr but he said that he'd had one set of it but it must have expired and been thrown out. (this makes me happy that my family dr isn't passing out APs but it was too bad it expired).

Thanks