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May 29, 2015, 03:10 PM
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Member Since: Jul 2004
Location: transitioning to pluto
Posts: 3,461
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I have as many questions as you do. SSI and SSDI have different rules according to my vocational counselor who just retired. 
You can work a certain amount with no loss of benefits for one but not the other.
When my husband applied for disability for me, I was what would be called completely non functioning. I spent 3 years floundering.
For the last 2 years, I have been doing everything I can possibly do to be okay. Spending 2 weeks in the ICU woke me up a bit.
Now, I need to do something. I am working with a new vocational counselor and hope that we can find something I can do to make me feel valuable again.
I have worked very hard to get where I am and want to be as proactive as I can. But I am afraid if I am too well, I will lose the services I presently receive.
I just sent in a form for my state offered insurance that I kind of remember filling out years ago. If it had not been for this insurance and Medicare, I would not have received the services I so desperately needed. The odd thing is I never applied for either of these insurances. But because I had them I was able to get better.
I am so afraid that now that I show signs of improvement that I will lose everything before I am ready.
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I also fear that some peon is going to step in and say, "oooops our mistake. You should never have received services and you owe us $27,000.
Can't I just be happy
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