Kiya, I wish I could give you a hundred hugs. I am so sorry. I just saw that you posted this. I am sorry I did not see it yesterday.

Would it help if someone goes with you when you have your PT? That could help.

When I was 3 I got very sick and had to be put in the hospital. I kept pulling out my IV. The solution was to tie me down and put a net over my bed/crib. My grandfather walked in the room and saw me like that and walked right back out. Years later he told me it gave him nightmares. But that is how they did things back then.

I can remember my dad bring me a milkshake and having trouble getting it through the net that covered my bed/crib. I think this is the reason that I fight with my doctors when they want me to go into the hospital.

Now a days they ask the parents to leave the room when they ask anyone under the age of 18 if they have been abused. My daughter has lupus to and has had other health issues and every new doctor asks us to leave the room and they ask her the same questions.

Take care my friend and if you need something I am here